Alsangels.21.01.08.connie.carter.and.iwia.photo...

| Person | Role in the ALS Community | Why She Matters | |--------|---------------------------|-----------------| | | Founder & Executive Director of ALS Angels (formerly “Angel’s Share”) | Connie turned a personal battle with ALS into a national support network that now touches more than 8,000 families across the United States. | | Iwia (full name: Iwia Kowalski ) | ALS patient, caregiver advocate, and community storyteller | Iwia’s candid videos and blog posts have become a vital source of information and emotional support for newly‑diagnosed families. |

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Photo Credit: ALS Angels – 08 January 2021 (ALSAngels.21.01.08.Connie.Carter.And.Iwia.Photo) | Person | Role in the ALS Community

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| | What It Looks Like | Impact (as of 2023) | |----------------|------------------------|------------------------| | Education | Free webinars, downloadable “Living‑With‑ALS” guides, and a 24/7 helpline | Over 12,000 families have accessed resources; 94 % report feeling “better prepared” after a session | | Financial Assistance | “Angel Grants” covering travel, home‑care equipment, and emergency bills | $3.2 M disbursed to 1,140 families | | Community Building | Regional meet‑ups, virtual support circles, and the annual “Angel Summit” | 85 % of participants say the community reduced feelings of isolation | | Advocacy & Research Funding | Partnerships with ALS Association, congressional briefings, and a $500k research endowment | Contributed to the FDA’s accelerated approval pathway for new ALS therapeutics in 2022 |